We are looking forward to another year at the Great Strides walk and we would love to have you be a part of Carter's Crew! It has been four years since cystic fibrosis has become part of our normal. I so vividly remember going in for Carter's one week appointment completely oblivious to the news that I was about to recieve. It is heartbreaking and scary as a parent to get the news that your child child has a life-threatening disease and will have to do daily treatments in order to "just breathe."
Four years later and there are still days where we are completely overwhelmed by cf, but now there are also moments where we are struck with complete gratitude and thankfulness. This is because we have seen how hard the cf community fights and we have seen how much love we are surrounded with. Carter has so many people in his corner cheering him on and this is truly what keeps us going. This boy is the most resilient and tough four year old. He really does not let anything get him down.
Carter is tough and we have no doubt that he is going to be an incredible cf fighter, but we walk because we know that here is more in store for all of those with cf. Real progress has been made in the search for a cure. The new modulator, Trikafta, was a huge stride in the right direction! Carter will be eligible to start it when he is 12 and the medicine will be a great placeholder until we get that cure. We are in the fight until it is done. By walking alongside us in our journey you are helping provide hope for us, Carter and all those with cf. We have every reason to believe that the cure is within reach and we are excited to be a part of it!
Please consider joining Carter's Crew by signing up below or making a donation to our team. We appreciate all of the love and support!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.