We are looking forward to another year at the Great Strides walk and we would love to have you be a part of Carter's Crew! It has been four years since cystic fibrosis has become part of our normal. I so vividly remember going in for Carter's one week appointment completely oblivious to the news that I was about to recieve. It is heartbreaking and scary as a parent to get the news that your child child has a life-threatening disease and will have to do daily treatments in order to "just breathe."
Four years later and there are still days where we are completely overwhelmed by cf, but now there are also moments where we are struck with complete gratitude and thankfulness. This is because we have seen how hard the cf community fights and we have seen how much love we are surrounded with. Carter has so many people in his corner cheering him on and this is truly what keeps us going. This boy is the most resilient and tough four year old. He really does not let anything get him down.
Carter is tough and we have no doubt that he is going to be an incredible cf fighter, but we walk because we know that here is more in store for all of those with cf. Real progress has been made in the search for a cure. The new modulator, Trikafta, was a huge stride in the right direction! Carter will be eligible to start it when he is 12 and the medicine will be a great placeholder until we get that cure. We are in the fight until it is done. By walking alongside us in our journey you are helping provide hope for us, Carter and all those with cf. We have every reason to believe that the cure is within reach and we are excited to be a part of it!
Please consider joining Carter's Crew by signing up below or making a donation to our team. We appreciate all of the love and support!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.