There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. Can you imagine what it would feel like to breathe on a daily basis through a straw? That is what breathing is like for many that are struggling with Cystic Fibrosis.
Our daughter, Ella was diagnosed with Cystic Fibrosis, by newborn screening, 13 years ago. This was very scary for our family. We did not know what her prognosis was going to be and how long we would have to enjoy our baby girl. It has been a journey of ups and downs, many prayers and much rejoicing. Although our journey may not be “typical”; every journey with CF looks different for each person and family, the journey... I will tell you, it is tough. That is why as a community we come together throughout the year to raise awareness and money to fund the research to cure Cystic Fibrosis. Because of the much support we have had, our fear has turned to HOPE!
On May 4, 2019 we come together, with HOPE, for the largest CF fundraiser of the year, the Cystic Fibrosis Great Strides walk. Not only do we walk and raise money for a cure for Ella, but for the MANY children and adults that are battling hard every day.
Thirteen years ago we brought Ella, at a mere 5 weeks old, to her first great Strides walk. It was a day full of emotion. This year is especially exciting as she just celebrated her 13th birthday by running a half marathon and placing FIRST in her age group. Ella is trying to focus on the victories in her journey, unfortunately that isn't the case for all those tht are battling CF. Through the years we have had numerous people join us, raise funds with us, pray with/for us, and support us in this tough, sometimes very exhausting journey.
We ask you today if, this year, you would join "Team Ella" and take a stand against this terrible disease that continues to take lives, every day, at such incredibly young ages? It doesn’t take much… Grab your walking shoes, your friends, your family and come on out to "Bde Maka Ska" (formerly Lake Calhoun) on Saturday, May 4 from 9am-noon and enjoy a beautiful walk around the lake. Enjoy the weather, community, and the opportunity to say you were part of the cure for Cystic Fibrosis!
If you are unable to walk with us that day, you can still help... Go ahead and register with Team Ella as a "virtual walker" and raise money that will help to add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100% tax deductible.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support Ella by making a donation to our Great Strides fundraising campaign today!
We have heard from so many that Ella has impacted their lives and gives inspiration to so many… If you have been impacted by Ella and her inspiration to live life to the fullest, please consider joining us and showing her your support. This disease can often be lonely, but with your support, she stays encouraged and continues to fight hard to stay strong!
Thank you for your support and taking the time to register today... See you on May 4!
Also, Our team color is light pink. Please join us by wearing a light pink t-shirt and/or bandana to show our team spirit and support!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.