It was back in September 2004 that Kyra was diagnosed with CF, and May 2005 that we came together as Kyra's Klan for the first time to support our sweet little girl, and raise money to help find a cure for CF at the Great Strides Walk! Little did we know back in 2005 that we would still be walking around Lake Calhoun in May of 2018 - still being supported by our amazing friends & family - still doing everything we can to find a cure for our not-so-little girl!
There are approximately 30,000 other Americans living with CF, and while improvements continue to be made (thanks to the CFF) in the area of treatments and progress towards a cure, there is still no cure for the majority of children and adults living with CF, including Kyra. So, we are back at this fundraising gig, and will continue until a cure is found - as long as it takes!
Please join us in our fundraising efforts and our fun morning walk around Lake Calhoun to honor Kyra and the many others who work hard to manage their CF. Click on the "Join our Team" button. From there you can make a donation and start your fundraising!
By becoming a member of our team and making a donation, you are joining an amazing group of Kyra's family and friends committed to finding a cure for CF. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.