Year number SEVEN! For those of you who are veterans of Great Strides - welcome back! For those of you who are new...
Drea was diagnosed at just a week old with Cystic Fibrosis, a genetic condition that causes the mucus in her lungs and pancreas to become thick and sticky, leading to lung infections, problems digesting food, and a host of other problems throughout the body. When Drea was just hours old, she had her first surgery to remove part of her small intestine that had become blocked. At 11 months old, she had her second surgery to remove the upper right lobe of her lung that had become infected beyond treatment. Since that time, we've been thrilled with her health and been able to follow through on our goal of no more body parts removed!
Drea is kept healthy through about 75 minutes of breathing treatments every day. She takes over 30 pills daily and has done several clinical trials to help develop new and better medications for herself and others who have CF. She is supported by an amazing team of professionals - pulmonologists, nurses, respiratory therapists, physical therapists, social worker, nutritionist, and more. She is also supported by a loving team of friends and family who care for her, challenger her, and love her.
These treatments and people are so successful that you would never know that she was sick by looking at her, talking to her, or even spending quite a bit of time with her. But let's be clear: her condition is serious and requires continued advances in medical care for her to live a full life.
In year seven, we have more hope than ever that a cure will be found soon. Just this year an incredible drug was approved for people with CF ages 12 and up and we can't wait for Drea to start it when it is approved for younger kids. It isn't a cure. But it will buy us valuable time until we get one. The motto for the CF Foundation is, "Until it's Done." Will you help us get there sooner and donate today?
By becoming a member of our team and making a donation, you are making the choice to continue on beside us. Your support- both financially for the CFF and as friends and family - give us hope.
Please support Drea!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Help us reach our fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.