The twins are 16 years old and enjoy 10th grade, music, dancing, lacrosse, their sisters, and most importantly each other.
To recap our story:
On August 23, 2006 Rebekka and I were blessed with two beautiful baby girls (Kerragyn and Giavanna). Little did we know that they were more special than we thought. When they were a few days old they were diagnosed with Cystic Fibrosis (CF).
We knew very little about CF and were devastated. The next few weeks were spent with many tears and more medical jargon than you find on an episode of "House". We were lucky to be surrounded by so many family and friends.
Giavanna spent about a month in the hospital and was able to come home first. That was a very exciting and depressing day. We never imagined that we would have to separate the twins.
Kerragyn spent about three months in the hospital and finally, right before Thanksgiving, we were able to have the whole family together at home.
Since then it has been a blur. The girls are already in 10th grade and growing up way to quick.
We have great doctors and do quarterly visits with a huge emphasis on lung function and weight.
New medications have significantly changed over the last few years. No longer do we have to do treatments daily (nebulizers and “shakie machines twice a day). We still are taking way to many pills. A medicine call TriKafta has been a mircle drug. They also take pills with every feeding - 30 pills a day.
While the medicine continues to improve we still need your help as it does not work for everyone. Please help us find a cure for CF, either through a donation, coming and being part of our walking team in St. Peter, or just a prayer.
I will never be able to Thank everyone who has supported me through the last 16 years enough, but THANKS!
God only gives you what you can handle, so smile, and enjoy every day.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.