WOW!!! It's hard to believe that this marks year 19 for Kyra's Klan! So much has changed for me and everyone with CF over the past 19 years - in the most promising and positive ways!
I've continued to be incredibly healthy - I still maintain a great lung function and acceptable weight. This great CF health is in large part thanks to Trikafta, the amazing medication that has been life-changing for so many individuals with CF, including myself. Diligence and consistency in managing Trikafta and my other medications is my key to staying healthy. I currently take about 20 pills/day, and still fill up my weekly pill box every Sunday and never forget to take them.
Although Trikafta and other medications have significantly lengthened the life expectancy of many individuals with CF, it is NOT a cure. There is still no cure for CF and some individuals with certain mutatations of CF are not effectively treated by Trikafta, so we need to continue to fundraise to support the reserach for improved treatments and a cure for everyone with CF.
Please join us in our fundraising efforts and a fun morning walk around Bde Maka Ska on May 6th in celebration of everyone that continues to work hard to manage CF and of the tremendous progress that has been made. Click on the "Join our Team" button. From there you can make a donation and start your fundraising!
By becoming a member of our team and making a donation, you are joining an amazing group of Kyra's family and friends committed to finding a cure for CF. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.