First off, thank you all of you for the years of support in our efforts to help the Cystic Fibrosis Foundation continue to make great strides in the fight to eliminate the life shortening aspect of this disease. We are lucky to have had your support over the years and with each passing day and every medical advancement, Edison (8) has had the opportunity to lead a more normal life and we are forever grateful for the support you have given this effort.
With that, the race for a cure still has many miles to go and we, the Hoppers, believe that goal is attainable. So, in 2022 we once again ask for your support. We will be walking on May 7th to, again, stand proud with other CF families and put our best foot forward in an effort to further change the CF landscape. When we asked Edison what he wanted to do for his birthday (May 3rd) one of the first things he said was "I want to do the CF walk again!".
We welcome support of all kinds. Encouraging words, additonal walkers, and financial donation. Whatever you can do to help is appreciated. Follow the links to learn more.
Thank you so much for everything you have done and for all you are willing to do in the future.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.