Hello family and friends,
We are so excited to be back in person for this years Great Strides event!
It has been six years since Carter was diagnosed with cystic fibrosis. We so vividly remember going in for his one week appointment completely oblivious to the news that we were about to recieve. It is heartbreaking and scary as a parent to get the news that your child has a life-threatening disease and will have to do daily treatments in order to stay healthy.
There are still days where we are completely overwhelmed by CF, but now there are also moments where we are struck with overwhelming gratitude and thankfulness. We have seen how hard the CF community fights and we have seen how much love and support we are surrounded with. Carter has so many people in his corner cheering him on and this is truly what keeps us going. This boy is the most resilient and tough six year old. There has not been one day where he has complained about his daily breathing treatment or his multiple doctors appointments. He really does not let anything get him down and we are so proud of how hard he works to keep himself healthy.
We walk because we know that there is more in store for all of those with CF. Real progress has been made in the search for a cure. The new modulator, Trikafta, was a huge stride in the right direction! Carter will get to start this medication this year when he turns six and we are so excited to see the positive impact it will have on him! Although this medicine is an amazing placeholder until we get that cure, we are in the fight until it is done. By walking alongside us in our journey you are helping provide hope for us, Carter and all those with CF. We have every reason to believe that the cure is within reach and we are excited to be a part of reaching the goal.
By joining us you are walking alongside us in our CF journey and we truly appreciate all of the support more than you know!
Brandon, Allie, Carter, Addie and Ava
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To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:
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