As you all know Trista was diagnosed in 2009 at the age of 5. So far she has only been hospitalized once back in 2011 for 16 days and has had five sinus surgerys. Trista is a real sweetheart and most of all a real inspiration. She puts up a fight every day! Trista enjoys swimming, basketball, softball, volleyball, camping, fishing and helping others. In August of 2016 she had started Orkambi which was approved to be her so called cure until something else comes along. In Aug of 2019 she was switched from Orkambi to Trikafta. Trikafta has increased her lung function, weight gain and also made her sweat more normal. Trikafta is the new drug to make Trista's body function more close to normal. In June 2021 for the most part when she is active during the day wether it is gym, basketball, softball, volleyball or swimming she doesn't need to do her vest treatment. They still want her to do one neb medication and one inhaler at night. It doesn't seem real but she has been enjoying having alittle freedom and acting more like a "normal" person. For someone that has been doing treatments twice a day for as long as she can remember it is a huge step. She still needs her enzymes when she eats but even that isn't as crucial now that she is on trikafta. All these medications would never be possible if it wasn't for all of you that are donating and/or helping collect money for research to develop new medications and ultimately finding a cure for Cystic Fibrosis. As a mother and father we are keeping our fingers crossed and waiting for the wonderful news that the cure is found.
Real progress has been made in the search for a cure!. There still is no cure but they are making huge strides. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support us by making a donation to my Great Strides fundraising campaign today!
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.