WOW!!! It's hard to believe that this marks year 18 for Kyra's Klan! So much has changed for Kyra and everyone with CF over the past 18 years - in the most promising and positive ways!
Kyra continues to be incredibly healthy - she has avoided Covid and continues to maintain a great lung function and acceptable weight. This great CF health is in large part thanks to Trikafta, the amazing medication that has been life-changing for so many individuals with CF, and Kyra's diligence and consistency in managing Trikafta and her other medications. She is still taking about 20 pills/day. Every Sunday she fills her weekly pill box, and does a great job of remembering to take them at the appropriate time each day.
Although Trikafta and other medications have significantly lengthened the life expectancy of many individuals with CF, it is NOT a cure. There is still no cure for CF and some individuals with certain mutatations of CF are not effectively treated by Trikafta, so we need to continue to fundraise to support the reserach for improved treatments and a cure for everyone with CF.
Please join us in our fundraising efforts and a fun morning walk around Bde Maka Ska on May 7th to celebrate Kyra and the many others who work hard to manage their CF. Click on the "Join our Team" button. From there you can make a donation and start your fundraising!
By becoming a member of our team and making a donation, you are joining an amazing group of Kyra's family and friends committed to finding a cure for CF. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
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