Our 1 year old son, Marley, was diagnosed with CF when he was 10 days old. We were shocked and knew next to nothing about Cystic Fibrosis. We turned to CFF.org and the CF community to learn everything possible in hopes of giving Marley the best opportunities to live a long and healthy life.
A couple months ago, Marley began taking a modulator drug that has surpassed our expectations, however it doesn't come without side effects and the unknown of long term effects to other organ systems. This is why CFF.org continues to pursue fundraising to help develop future modulator drugs with high effectiveness and less side effects. And of course the ultimate pursuit of a CURE.
Thank you for taking the time to learn about this disease and support our CF Warrior Marley!
As Marley's mom, I have decided to take on the challenge of running the Steamboat Half Marathon on June 4th. The course runs right past our home in Colorado and I look forward to seeing my boys cheer me along as I run for Marley.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.