My Great Strides Story
Cystic Fibrosis (CF) is a genetic disorder that affects the respiratory, digestive, and reproductive systems. It is caused by a mutated gene that regulates the transport of salt and water in and out of cells, leading to the formation of thick and sticky mucus in the lungs and other organs. This mucus can block airways, making it difficult to breathe, and can also harbor bacteria, leading to recurrent lung infections. CF can also affect the digestive system by clogging the ducts that carry digestive juices from the pancreas to the small intestine, leading to malnutrition. CF is a life-threatening disease that has no cure, but with advances in medical care and treatments, the life expectancy of individuals with CF has increased.
KJ was diagnosed with Cystic Fibrosis (CF) at 3 months old. CF is a progressive and life-threatening disease, but science has provided hope for a relatively normal life. KJ undergoes twice-daily vest therapy and daily nebulizer treatment to help thin out mucus and prevent infection. This year, KJ's family will be participating in the CF Great Strides Walk in Minnesota, and they would like others to join them in the fundraiser walk.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.