Laurie Privet

My Great Strides Story

This is my grandson Anver.  He is 4 years old now and was born with Cystic Fibrosis.  He deals with his CF everyday.  He does breathing treatments at least twice a day and takes meds before he can eat anything…but he is fortunate in that he qualifies for the new miracle CF medicine called Trikafta.  We are waiting on the FDA to open it up to his age group but we are excited and have hope.  However not everyone qualifies and some that do don’t tolerate it well so have to stop. So for all those people we continue the fight.  We all know money rules the world and in turn CF research, so again in May we will walk, and raise money to continue finding new meds and hopefully this year we find a cure.  Every dollar helps…and  one day someone’s donated dollar will be the one that funds the cure.  Maybe it will be your dollar…Please give if you can.  Thank you from our little CF fighter!!!

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.