Chris&Sarah Dooley

Our Great Strides Story

Our family made a commitment after our son, Aiden, was diagnosed with Cystic Fibrosis at six weeks of age. Aiden was in and out of the hospital the first few weeks of his life for "failure to thrive". After being considered malnourished by U of MN physicians and continuing to lose weight, Aiden's newborn screening was re-evaluated and what was originally missed in the screening was then positive for Cystic Fibrosis. Since then, he attends quarterly check-ups at the University of MN, takes various daily medications including digestive enzymes with any food that he eats, and needs nebulized vest therapy twice daily for the rest of his life. He also participates in yearly lung function tests, glucose screenings, and x-rays. He is very active and most wouldn't know all that he goes through to stay healthy. For now, Aiden continues to thrive and live his life as close to "normal" as possible thanks to the CF Foundation and their amazing research for medications and a cure! 

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting our fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.