Like so many parents and family members before us, we knew nothing about cystic fibrosis prior to Rory's diagnosis. Even at 6 years old Rory has touched so many people. Her spunky, sassy, yet sweet personality is one no one can forget. She loves to teach people about her disease and is beyond her years in her knowledge of her medications, always impressing the people not only in her life, but also those that follow her story and have yet to meet her in person. We strive to normalize her medications and treatments with other children but also educate people on cystic fibrosis and why a we stride.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.