For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows – progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
My little nephew Tristan aka Triscuit Buns or T-Money has cyctic fibrosis. If you have seen the movie five feet apart this kind of shows the daily struggles someone with cystic fibrosis goes through. He has to be attached to a machine twice a day for 30 mintues each time using a vest and a nebulizer to help shake the mucus from the walls of his lungs. He has a weaker immune system and will eventually need new lungs. The tough part isn't just finding new lungs for him that are a match the tough part is that these lungs will last no longer than 5 years. The biggest worry I have is that my sister is pregnant again and if she has another kid with cystic fibrosis these two children are suppose to stay 6 feet away from eachother at all times and are not suppose to share anything becuase they can catch each others viruses. I mean can you imagine not giving your sibling a hug or having to wear gloves just in case you brother or sister play with your toys. I know we are seriously making some progress on finding a cure for this disease and I would love for my niece and nephew to be a part of this success story in their lifetime. All your donations are much appreciated and are going to a cause I care very deeply about!
I walk for them. Will you join me and support my Great Strides fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short.
By walking with me in Great Strides, you can help accelerate the Foundation’s pursuit of new therapies and provide vital support to meet the needs of the CF community.
Please support me!
Your participation will help us get one step closer to ending this terrible disease. Let’s make CF stand for Cure Found.