Tristan was diagnosed with Cystic Fibrosis through his newborn screening. Our not so little CF warrior is so strong. Each day he does two 30 minute treatments with his vibrating vest and nebulizer to help clear his lungs of mucus so that he can breathe better. He also takes a medicine called Kalydeco which is supposed to help slow the progression of the disease down.
We meet quarterly at the Children's Hospital where we meet with a CF team to go over his progress, test results and any health concerns. He gets his blood drawn among other tests to see how the disease has impacted him. He is stronger than Nick and I for sure. He has to go through so much that no other kid should have to.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease.Please help support Tristan and The CF Foundation in raising money and awareness until CF stands for Cure Found.
Many lives are cut far too short. Help us add tomorrows to the lives of people living with CF. Will you join me? Please consider making a donation to my Great Strides fundraising campaign today!
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.