As many of you know, Tristan was diagnosed with Cystic Fibrosis through his newborn screening. As first time parents, Nick and I were devastated to hear the results of this test. No parent wants to hear their precious, bundle of joy has a life threatening disease that can take their life sooner than yours. After some time we wrapped our heads around the reality of it, put away the what ifs and accepted our new norm.
Our little CF warrior is so strong. Each day he does two 30 minute treatments with his vibrating vest and nebulizer to help clear his lungs of mucous so that he can breathe better. He also takes a medicine called Kalydeco which is supposed to help slow the progression of the disease down. We meet quarterly at the Children's Hospital where we meet with a CF team to go over his progress, test results and any health concerns. He gets his blood drawn among other tests to see how the disease has impacted him. He is stronger than Nick and I for sure. He has to go through so much that no other kid should have to. Help us walk to raise awareness or donate money if you can to help find a cure for this awful disease.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts. Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Real progress has been for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Please consider making a donation to my Great Strides fundraising campaign today!