Tristan was diagnosed with Cystic Fibrosis at birth. Each day he has to do two 30 minute treatments with his vibrating vest and nebulizer to help clear his lungs of mucus. He also takes a modulator, Kalydeco which is supposed to help slow the progression of the disease down.
We meet quarterly at the Children's Hospital where we meet with a CF team to go over disease progression, test results and any health concerns. He gets his blood drawn, x-rays and glucose tested annually.
He is stronger than Nick and I for sure. He has to go through so much that no other kid should have to.
Real progress has been made for those who have CF, but there is still no cure for this life threatening disease. The current average life expectancy has moved to above 50 years of age which is great but that's not enough for us and Tristan. Please help support Tristan and The CF Foundation in raising money and awareness until CF stands for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.