Hello Henry's Heroes!
Last year we told you about an amazing new drug, Trikafta, that Henry has been taking since 2020. This drug continues to keep Henry's lungs healthy without hours of respiratory treatments every day.
The Cystic Fibrosis Foundation funded the research and development of this drug. Which really means that YOU AND YOUR GENEROUS DONATIONS OVER THE YEARS HAVE MADE THIS NEW DRUG POSSIBLE.
Here's the catch; this medicine doesn't work for everyone who has CF and it is very, very expensive. It is also not a cure. While the median age of a person living with CF has jumped to 46, it still isn't enough for me or Henry. We want everyone with CF to have access to this type of drug, and we don't want science to stop working toward a cure.
Please consider donating to the Cystic Fibrosis Foundation once again. It's proven that your donation changes lives!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.