Hello Henry's Heroes!
You and your generous donations over the years have made Henry's life (and others with CF) so much better. Trikafta continues to be a miracle drug that frees Henry from daily chest therapy. His lung functions continue to remain high and we are so thankful.
Here's the catch; this medicine doesn't work for everyone who has CF and it is very, very expensive. It is also not a cure. While the median age of a person living with CF has jumped to 46, it still isn't enough for me or Henry. We want everyone with CF to have access to this type of drug, and we don't want science to stop working toward a cure.
Please consider donating to the Cystic Fibrosis Foundation once again. It's proven that your donation changes lives!
Kirsten
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.