WOW!!! It's hard to believe that this marks year 19 for Kyra's Klan! So much has changed for me and everyone with CF over the past 19 years - in the most promising and positive ways!
I'm now a freshman at the University of Minnesota, planning on majoring in Journalism and Marketing. Freshman year has been a lot of fun but also definitely a big change!
I've still been incredibly healthy - I continue to maintain a great lung function and acceptable weight. This great CF health is in large part thanks to Trikafta, the amazing medication that has been life-changing for so many individuals with CF, including myself. Diligence and consistency in managing Trikafta and my other medications is my key to staying healthy. I currently take about 20 pills/day, and still fill up my weekly pill box every Sunday and never forget to take them.
I no longer need to do my vest or nebulizer treatments to stay healthy, which definitely makes life easier for me, especially being in college now. On the other hand, I am also now managing a more recent diagnosis of ulcerative colitis (unrelated to CF) through bi-weekly Humira injections. Although the injections are an inconvenience, I don't really mind doing them too much since the Humira has been the only treatment that effectively treats and manages my symptoms.
While I manage a lot independently, I still rely on my mom to deal with insurance along with ordering my medications through the three different pharmacies that we have to use! A few times she has had to drop off my meds for me at school- it’s better than them getting lost in the dorm mail system! Plus she always throws in some food for me!
We have set our fundraising goal for Kyra's Klan at $19,000 this our 19th year! Please join our team and help us reach our goal- join us in fundraising and a fun morning walk around Bde Maka Ska on May 6th! The Great Strides Walk is a great way to celebrate everyone that continues to work hard to manage CF and the tremendous progress that has been made. Click on the "Join our Team" button. From there you can make a donation and start your fundraising!
By becoming a member of our team and/or making a donation, you are joining an amazing group of my family and friends committed to finding a cure for CF. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
- Kyra :)