Kyra continues to be incredibly healthy - she has avoided Covid and continues to maintain a great lung function and acceptable weight. This great CF health is in large part thanks to Trikafta, the amazing medication that has been life-changing for so many individuals with CF, and Kyra's diligence and consistency in managing Trikafta and her other medications. She is still taking about 20 pills/day. Every Sunday she fills her weekly pill box, and does a great job of remembering to take them at the appropriate time each day.
Kyra no longer needs to do vest or nebulizer treatments to stay healthy, which definitely makes life easier for her. On the other hand, Kyra is now also managing a more recent diagnosis of ulcertive colitis (unrelated to CF) through weekly Humira injections. Although the injections are an inconvenience, Kyra doesn't really mind too much since the Humira has been the only treatment that effectively manages her symptoms.
Kyra manages her CF and UC very independently - she is definitely ready to head off to college this fall. She only asks that I (Amy) continue to order her medications through the 3 different pharmacies we are required to use, and deal with everything related to insurance (which I am happy to do)! We are so proud of her for becoming so indepedent and successfully managing everything - she has certainly come a long way over the past nearly 18 years!
We have set our fundraising goal for Kyra's Klan at $18,000 this our 18th year! Please join our team and help us reach our goal! Please join us in our fundraising efforts and a fun morning walk around Bde Maka Ska on May 7th to celebrate Kyra and the many others who work hard to manage their CF. Click on the "Join our Team" button. From there you can make a donation and start your fundraising!
By becoming a member of our team and/or making a donation, you are joining an amazing group of Kyra's family and friends committed to finding a cure for CF. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.