As you all know Trista was diagnosed in 2009 at the age of 5. So far she has only been hospitalized once back in 2011 for 16 days and has had five sinus surgerys. Trista is a real sweetheart and most of all a real inspiration. She puts up a fight every day! Trista enjoys swimming, basketball, softball, volleyball, camping, fishing and helping others. In August of 2016 she had started Orkambi which was approved to be her so called cure until something else comes along. In Aug of 2019 she was switched from Orkambi to Trikafta. Trikafta has increased her lung function, weight gain and also made her sweat more normal. Trikafta is the new drug to make Trista's body function more close to normal. In June 2021 for the most part when she is active during the day wether it is gym, basketball, softball, volleyball or swimming she doesn't need to do her vest treatment. They still want her to do one neb medication and one inhaler at night. It doesn't seem real but she has been enjoying having alittle freedom and acting more like a "normal" person. For someone that has been doing treatments twice a day for as long as she can remember it is a huge step. She still needs her enzymes when she eats but even that isn't as crucial now that she is on trikafta. All these medications would never be possible if it wasn't for all of you that are donating and/or helping collect money for research to develop new medications and ultimately finding a cure for Cystic Fibrosis. As a mother and father we are keeping our fingers crossed and waiting for the wonderful news that the cure is found.
Real progress has been made in the search for a cure!. There still is no cure but they are making huge strides. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.