Our Great Strides Story
Aubree Kay was born on October 29, 2010. 5 days later we got the call that changed our world. Aubree was diagnosed with Cystic Fibrosis. There is currently no cure for cystic fibrosis. Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
Aubree has had a lot of CF complications over the last 2 years. She has been diagnosed with osteopenia a form of osteoporosis. She has had 6 vertebrae fractures and a hip fracture. We have been able to manage this with infusions to pump a very high dose of Vitamin D and C into her system. CF plays a huge effect on this as if her body is not absorbing nutrients it effects other parts of her body.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.