I'm not ready to change my post from 2019. I miss you every day Jer. I hope one day we can cure CF and I know you are cheering the progress on from a better place. You walked beside me in 2019, this year you will be walking beside all of us in our hearts.
Cystic Fibrosis is something that my family and friends have lived with since my brother was born. I have never known a world without CF, my oldest brother is my favorite person on this planet and he is a fighter. My family has personally benefited from the therapies that have been developed, I believe that the money we raise for these walks have been able to directly affect Jerame’s care. As some of you know Jer has had a wild year, he received the gift of life at the end of July! After a grueling surgery, he was extubated within a few day of getting his new donor lungs. Since then it has been an uphill battle and one that he and his wife have been kicking butt at.Jer has for the most part been home during this journey which is a blessing because a lot of transplant patients don’t live close enough to the facility and have to get an apartment to be close to the hospital. Recently Jer has started dialysis which is a big commitment and not something we hoped to see for a long time, but never the less Jer is getting it done. I hope one day to live in a world with one less disease, please consider donating and/or walking with us in St. Peter in May!
Cystic Fibrosis is something that my family and friends have lived with since my brother was born. I have never known a world without CF, my oldest brother is my favorite person on this planet and he is a fighter. My family has personally benefited from the therapies that have been developed, I believe that the money we raise for these walks have been able to directly affect Jerame’s care. He is starting the newest gene therapy meds that are on the market. While we are hopeful, we have also had to face the reality of what CF does to you, especially this last year. CF slowly picks away at you, and then before you know it you look back and see that it has been gaining on you. Jerame has been in and out of the hospital this year, he has dropped weight, and yet he still has hope. I am asking for donations to help find a cure for this terrible disease. I want more time for my brother and a better life for him and anyone else with this disease. Please consider walking with us May 12th in St. Peter. Please consider being an organ donor, one day our direction of care will lead us down that road. I want to live in a world without Cystic Fibrosis, and I know it is possible.There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
FOR YOUR SAFETY AND THE SAFETY OF OTHERS: