Our Great Strides Story
Cystic Fibrosis (CF) is a genetic disorder that affects the respiratory, digestive, and reproductive systems. It is caused by a mutated gene that regulates the transport of salt and water in and out of cells, leading to the formation of thick and sticky mucus in the lungs and other organs. This mucus can block airways, making it difficult to breathe, and can also harbor bacteria, leading to recurrent lung infections. CF can also affect the digestive system by clogging the ducts that carry digestive juices from the pancreas to the small intestine, leading to malnutrition. CF is a life-threatening disease that has no cure, but with advances in medical care and treatments, the life expectancy of individuals with CF has increased.
KJ was diagnosed with Cystic Fibrosis (CF) at 3 months old. CF is a progressive and life-threatening disease, but science has provided hope for a relatively normal life. KJ undergoes twice-daily vest therapy and daily nebulizer treatment to help thin out mucus and prevent infection. This year, KJ's family will be participating in the CF Great Strides Walk in Minnesota, and they would like others to join them in the fundraiser walk.
Our team is driven by a dream that one day, every person with Cystic Fibrosis will have the chance to live a long, healthy life. You can help us reach that goal! Join our team to help make a difference in the lives of all people living with CF. To become a member, click the "Join this team" button. From there, you can donate and start fundraising. As a member of our team, you are joining a growing community of people committed to finding a cure for cystic fibrosis. Together, we can make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.