Our team name is Raising for Rory. No, None if the donations raised go to Rory herself. So why Raising for Rory? Because in honor of Rory we are raising awareness of what Cystic Fibrosis is. We are raising donations to fund research and assistance for those with Cystic Fibrosis. And we are, of course, raising Rory! Although I am here actually raising her, I frequently get advice or see helpful information for raising a child with CF from fellow CF parents, groups, doctors, nurses and of course support from my friends and family! It takes a village to raise a child I once heard.
There were some amazing things that happened for the CF community recently and I can't wait to see what is to come this year. And this is where I ask for your help! I would love if you all could take a minute to sign up to walk with us, make a donation when/if you can, and share the event!!
The Cystic Fibrosis Foundation is NOT government funded. Research runs solely off donations. Our goal is to educate and raise awareness for Cystic Fibrosis, and hopefully with it donations to help find a cure. Josh and I, like so many other parents had no idea what it was or that we were even carriers. So many things to learn and information to pass on! Along with raising awareness we would also like to raise donations. New research costs money but it is so worth it! Reading about all the medications and treatments in store for people with cystic fibrosis is awesome. Someday they will all live normal lives and not have to worry about this disease!
Join our team and help add tomorrows! Donations made go straight to the foundation, just in honor of little miss Rory. Follow Raising for Rory on facebook to see how she is doing. Cystic Fibrosis events will also be shared on this page, as well as fundraisers and updates the foundation shares and awesome stories about others living with Cystic Fibrosis!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us?
By making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Be sure to follow the facebook page to get updates on the yearly walks! They are so much fun and such a great cause! Very family oriented!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.