Addison Baily

Well hello everyone! Its me, Addison I was diagnosed with CF through the newborn screening process and follow up sweat test. My big brother, Krayton also has CF and is a big supporter and role model for how to handle this crazy chronic condition. I actually have been relatively healthy and if you'd look at me, you wouldn't even have a clue what's going on inside my body and how hard I have to work to keep healthy! I currently do 30 minutes of vest treatments twice a day, albuterol nebulizer at least twice a day, take Orkambi twice a day, and take about 18-20 Creon pills each day. I mastered the whole pill swallowing technique when I was about 15 months old! At my age, I'm patiently waiting to be eligible to switch to the game changer medication, Trikafta! Our hope is to begin that medication no later than May 2023 which at the minimum will take the place of the Orkambi. So far, with other age groups, this medication has shown remarkable results that could help with my life expectancy!

With that being said though, I could use your help-- just like my brother could, too!

We are at a pivotal moment in the history of cystic fibrosis and your support matters now more than ever. So much has happened over the past few years with breakthrough medications and treatments that have made living with CF seem so much more sustainable. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line (whether its crawling or walking). Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!