Amanda Lee

My Great Strides Story

Lauren Jean was diagnosed with Cystic Fibrosis when she was nine days old; neither Chris nor I had CF in our family, so to say we were shocked to find out we were both carriers is an understatement!  Starting from day 9 of Lauren's little life, we started her on pancreatic enzymes to help her digest her food -- medication that she still takes today, in addition to nebulizers and daily vest therapy that she does twice a day.   Since her diagnosis, there have been 'miracle' drugs approved by the FDA for Lauren's CF mutations that targets the main cause of CF.  It is NOT a cure - but CLOSE!  And they are continuing to work toward that CURE!!

Please consider making a donation to the Cystic Fibrosis Foundation to continue to provide these medications to Lauren and all of those living with CF!   

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.