Team!!!! Before you scroll on and not read what all I wrote below, just let me tell you how awesome you are to be on this journey with us! I FIRMLY believe Nic does as well as he does because of YOU and your support!!!
This has been the most exciting year yet...90% of CF Warriors have the medication "Trikafta" and the results have been AMAZING for many! As awesome as this medication is, the are 10% CF Foundation needs to cover. I personally promised a Grandmother that I would not stop fighting for her grandson who falls in the 10%category. when I attended Volunteer Confrence last March. CF Foundation has also rolled out "A Pathway to a Cure". That's right...A CURE!!!!! It directs us to the exciting future of Gene Editing. We still need lots of Hope, Prayer, Funds!!!!!!!
Right now, Ic is enjoying the benefits from Trikafta. He's breathing better than he ever had before! Here can laugh without going Into a coughing fit. Is been Really awesome to witness.
I'm also working on a Super Fun Fundraiser Called "Better When I'm Dancing" a color dance To cure Cystic Fibrosis. more details to come!
This will be our 15 year participating in Great Strides, and each year gets better and bigger.!!!!
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure. To become a "Virtual Walker" you will help Nic reach his goal of being the largest team in Tucson, again!
#UnitItsDone #WorthFightingFor #BestTeamEver
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
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ATTENDANCE POLICY:
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.