Dayson is just like any other normal, energetic and fun boy, and you would never guess that he had a disease, but he has cystic fibrosis. He was diagnosed when he was 8 months old. Once we figured out that it was cystic fibrosis and he was put on the right medications, his health improved drastically. He has been pretty healthy as he fights this disease but has been hospitalized 15 times due to complications caused by this disease. Dayson has to take a lot of different medications every day along with breathing treatments and chest physiotherapy. He doesn't know any different and we try to make it a routine, just like brushing your teeth every day. There are days that he is bummed that he has to take so many meds and do so many treatments, but he also knows it makes him feel and breathe better, so he hardly ever complains. He goes to the CF clinic every 3 months for a 3 - 4 hour visit to meet with the Pediatric Pulmonologist, Respiratory Therapist, Social Worker, Nutritionist, and nurse. He is such a good sport about all of the poking and prodding and questions. He is such a sweet kid, who at times can be a punk but for the most part he is such a sweetheart and everyone who knows him, loves him. We are so grateful to have him in our family and that is why this fundraiser is so important to us. The average life span for those living with Cystic Fibrosis is about 40 years old. When he was diagnosed 12 years ago the average life span was 32, so it keeps climbing because of all of the research and new medications coming available. For instance, he started a drug trial in July of 2018 and ever since he started on that study, his health has drastically improved. He just celebrated a year without a hospital stay, which for him his HUGE. We are so grateful for the new medication and look forward to whats coming next for our community. In order for the life span to keep climbing, we need to keep donating money for more and new research and new medications. Any amount will help and add up if we all pitch in. Also, thank YOU so much for taking the time to read this and support us in this fight against Cystic Fibrosis. Love, The Judds
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.