Micah is an amazing 5 year old.He loves running, climbing, exploring, building things with Legos, Super Mario Bros. and DC Super Hero Girls.Micah is a smart and talented little boy who loves his baby sister to the stars and back.On the outside, he looks and seems totally “normal,” but on the inside, Micah suffers from cystic fibrosis.Micah was diagnosed with cystic fibrosis (CF for short) at 16 days old.CF affects mostly the lungs and pancreas.It is a gene mutation that causes a buildup of mucus on the lungs and other organs creating a “bacteria paradise” inside, and there is no cure.We do our best to keep Micah healthy with a daily regimen of medications and breathing treatments.Micah takes about 12 pills a day to help digest food, a multi vitamin at night.His breathing treatments consist of 3 inhaled medications while wearing a vest that shakes him for 30 minutes twice a day to break up the mucus from his lungs.
In 2013 when he was born, the lifespan for someone living with CF was 37 years old, it is now 47 years old.No parent should EVER have to bury their child, and I don’t intend to bury mine.With the help of the Cystic Fibrosis Foundation, we are creating better treatments, therapies, medications, and guidelines that are increasing the lifespan of CF patients.Because of the CF Foundation, Micah has an amazing care team consisting of a pulmonologist, respiratory therapist, pharmacist, dietitian, social worker, and mental health coordinator, all of which he sees every 3 months to update his care plan.
With your help, we WILL add tomorrows and someday make CF stand for CURE FOUND!Join team Little Lion Man and walk with us as we search for a cure.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.