Micah is an amazing 5 year old.He loves running, climbing, exploring, building things with Legos, Super Mario Bros. and DC Super Hero Girls.Micah is a smart and talented little boy who loves his baby sister to the stars and back.On the outside, he looks and seems totally “normal,” but on the inside, Micah suffers from cystic fibrosis.Micah was diagnosed with cystic fibrosis (CF for short) at 16 days old.CF affects mostly the lungs and pancreas.It is a gene mutation that causes a buildup of mucus on the lungs and other organs creating a “bacteria paradise” inside, and there is no cure.We do our best to keep Micah healthy with a daily regimen of medications and breathing treatments.Micah takes about 12 pills a day to help digest food, a multi vitamin at night.His breathing treatments consist of 3 inhaled medications while wearing a vest that shakes him for 30 minutes twice a day to break up the mucus from his lungs.
In 2013 when he was born, the lifespan for someone living with CF was 37 years old, it is now 47 years old.No parent should EVER have to bury their child, and I don’t intend to bury mine.With the help of the Cystic Fibrosis Foundation, we are creating better treatments, therapies, medications, and guidelines that are increasing the lifespan of CF patients.Because of the CF Foundation, Micah has an amazing care team consisting of a pulmonologist, respiratory therapist, pharmacist, dietitian, social worker, and mental health coordinator, all of which he sees every 3 months to update his care plan.
With your help, we WILL add tomorrows and someday make CF stand for CURE FOUND!Join team Little Lion Man and walk with us as we search for a cure.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.