Micah's Story
By the time he was 3 weeks old, Micah was diagnosed with Cystic Fibrosis. From that day forth, we knew we had to do everything in our power to find a cure.
At just a few weeks old, we started breathing treatments and chest physiotherapy. Micah was also drinking bottles with 4X the amount of recommended formula, just to keep his caloric intake up.
Fast forward to today... Micah is an incredibly active, smart and talented 10 year old. He is active in his cub scout troop, gymnastics and school (4th grade). Although he is on a miracle of a drug (Trikafta), it is not a cure. Micah still spends countless hours attached to his vest machine and nebulizer compressor... every day... at least twice a day...
Although we are very excited about the progress the CF Foundation has made for Micah, and all CF Heroes, we will not be done until the medications are no longer required, the treatments are no longer required, the fear of losing another child (or adult) is no longer required.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.