Micah is an amazing 5 year old. He loves running, climbing, exploring, building things with Legos, Super Mario Bros. and DC Super Hero Girls. Micah is a smart and talented little boy who loves his baby sister to the stars and back. On the outside, he looks and seems totally “normal,” but on the inside, Micah suffers from cystic fibrosis. Micah was diagnosed with cystic fibrosis (CF for short) at 16 days old. CF affects mostly the lungs and pancreas. It is a gene mutation that causes a buildup of mucus on the lungs and other organs creating a “bacteria paradise” inside, and there is no cure. We do our best to keep Micah healthy with a daily regimen of medications and breathing treatments. Micah takes about 12 pills a day to help digest food, a multi vitamin at night. His breathing treatments consist of 3 inhaled medications while wearing a vest that shakes him for 30 minutes twice a day to break up the mucus from his lungs.
In 2013 when he was born, the lifespan for someone living with CF was 37 years old, it is now 47 years old. No parent should EVER have to bury their child, and I don’t intend to bury mine. With the help of the Cystic Fibrosis Foundation, we are creating better treatments, therapies, medications, and guidelines that are increasing the lifespan of CF patients. Because of the CF Foundation, Micah has an amazing care team consisting of a pulmonologist, respiratory therapist, pharmacist, dietitian, social worker, and mental health coordinator, all of which he sees every 3 months to update his care plan.
With your help, we WILL add tomorrows and someday make CF stand for CURE FOUND! Join team Little Lion Man and walk with us as we search for a cure.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
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