Micah is an amazing 5 year old.He loves running, climbing, exploring, building things with Legos, Super Mario Bros. and DC Super Hero Girls.Micah is a smart and talented little boy who loves his baby sister to the stars and back.On the outside, he looks and seems totally “normal,” but on the inside, Micah suffers from cystic fibrosis.Micah was diagnosed with cystic fibrosis (CF for short) at 16 days old.CF affects mostly the lungs and pancreas.It is a gene mutation that causes a buildup of mucus on the lungs and other organs creating a “bacteria paradise” inside, and there is no cure.We do our best to keep Micah healthy with a daily regimen of medications and breathing treatments.Micah takes about 12 pills a day to help digest food, a multi vitamin at night.His breathing treatments consist of 3 inhaled medications while wearing a vest that shakes him for 30 minutes twice a day to break up the mucus from his lungs.
In 2013 when he was born, the lifespan for someone living with CF was 37 years old, it is now 47 years old.No parent should EVER have to bury their child, and I don’t intend to bury mine.With the help of the Cystic Fibrosis Foundation, we are creating better treatments, therapies, medications, and guidelines that are increasing the lifespan of CF patients.Because of the CF Foundation, Micah has an amazing care team consisting of a pulmonologist, respiratory therapist, pharmacist, dietitian, social worker, and mental health coordinator, all of which he sees every 3 months to update his care plan.
With your help, we WILL add tomorrows and someday make CF stand for CURE FOUND!Join team Little Lion Man and walk with us as we search for a cure.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.