Dayson is just like any other normal, energetic and fun boy, and you would never guess that he had a disease, but he has cystic fibrosis. He was diagnosed when he was 8 months old. Once we figured out that it was cystic fibrosis and he was put on the right medications, his health improved drastically. He has been pretty healthy as he fights this disease but has been hospitalized 15 times due to complications caused by this disease. Dayson has to take a lot of different medications every day along with breathing treatments and chest physiotherapy. He doesn't know any different and we try to make it a routine, just like brushing your teeth every day. There are days that he is bummed that he has to take so many meds and do so many treatments, but he also knows it makes him feel and breathe better, so he hardly ever complains. He goes to the CF clinic every 3 months for a 3 - 4 hour visit to meet with the Pediatric Pulmonologist, Respiratory Therapist, Social Worker, Nutritionist, and nurse. He is such a good sport about all of the poking and prodding and questions. He is such a sweet kid, who at times can be a punk but for the most part he is such a sweetheart and everyone who knows him, loves him. We are so grateful to have him in our family and that is why this fundraiser is so important to us. The average life span for those living with Cystic Fibrosis is about 40 years old. When he was diagnosed 12 years ago the average life span was 32, so it keeps climbing because of all of the research and new medications coming available. For instance, he started a drug trial in July of 2018 and ever since he started on that study, his health has drastically improved. He just celebrated a year without a hospital stay, which for him his HUGE. We are so grateful for the new medication and look forward to whats coming next for our community. In order for the life span to keep climbing, we need to keep donating money for more and new research and new medications. Any amount will help and add up if we all pitch in. Also, thank YOU so much for taking the time to read this and support us in this fight against Cystic Fibrosis. Love, The Judds
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.