Dayson is just like any other normal, energetic and fun boy, and you would never guess that he had a disease, but he has cystic fibrosis. He was diagnosed when he was 8 months old. Once we figured out that it was cystic fibrosis and he was put on the right medications, his health improved drastically. He has been pretty healthy as he fights this disease but has been hospitalized 15 times due to complications caused by this disease. Dayson has to take a lot of different medications every day along with breathing treatments and chest physiotherapy. He doesn't know any different and we try to make it a routine, just like brushing your teeth every day. There are days that he is bummed that he has to take so many meds and do so many treatments, but he also knows it makes him feel and breathe better, so he hardly ever complains. He goes to the CF clinic every 3 months for a 3 - 4 hour visit to meet with the Pediatric Pulmonologist, Respiratory Therapist, Social Worker, Nutritionist, and nurse. He is such a good sport about all of the poking and prodding and questions. He is such a sweet kid, who at times can be a punk but for the most part he is such a sweetheart and everyone who knows him, loves him. We are so grateful to have him in our family and that is why this fundraiser is so important to us. The average life span for those living with Cystic Fibrosis is about 40 years old. When he was diagnosed 12 years ago the average life span was 32, so it keeps climbing because of all of the research and new medications coming available. For instance, he started a drug trial in July of 2018 and ever since he started on that study, his health has drastically improved. He just celebrated a year without a hospital stay, which for him his HUGE. We are so grateful for the new medication and look forward to whats coming next for our community. In order for the life span to keep climbing, we need to keep donating money for more and new research and new medications. Any amount will help and add up if we all pitch in. Also, thank YOU so much for taking the time to read this and support us in this fight against Cystic Fibrosis. Love, The Judds
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.