Susan Samoy

Dear family and friends, 

Most of you know I raise money because I lost two nieces to this horrible disease.  Harper, my granddaughter is a carrier.  I pray by the time she has children CF will mean Cure Found.  Kris would have been 53 years old this year.  So hard to believe she died over 20 years ago.  Since she has passed Cystic Fibrosis Foundation has made a lot of progress in the treatment of the disease.  I am sure most of you heard that the FDA just approved a new breakthrough therapy called Trikafta that is helping 90% of those affected my CF.  But it is not a cure.  We still need to continue to raise money to find a cure.  That is what I am asking you to do.  Help me raise money to continue to fund the foundation so we can find a cure.

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). Both parents must have the gene for the child to have Cystic Fibrosis.  A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.  Nichole died when she was 4 months in my brother’s arm.  Kris we called our miracle baby because when she was born the average age for a child with CF was 7 and she died right before she turned 30.  Kris was born in 1970. 

I am asking you to support me and give to the Cystic Fibrosis Foundation.  Your generous gift will be used to help support the Foundation’s mission of finding a cure and improving the lives of those with CF. Your gift is 100 percent tax deductible.

Making a donation is easy and secure. Just click the link below that says, "Click here to visit my personal page" to make a donation that will support my team. Any amount you can donate is greatly appreciated. Your support will help fuel lifesaving CF programs.

To learn more about CF and the CF Foundation, visit www.cff.org.

Thank you for supporting Great Strides! Together, we can make a difference and “add tomorrows” to the lives of those with CF. Let’s make CF stand for “cure found”.