Flynn’s Crew is back in action again this year! Come down to The Mall on June 3rd to ride the carousel, have some popsicles, and walk with us as we join together to support cystic fibrosis research!
Tenacious, genuine, silly, creative, and loving are just a few words to describe our 4.5-year-old CF fighter, Flynn. Flynn will strike up a conversation with just about anyone and takes his job as big brother very seriously. He loves sharks, rescue vehicles, and turning everything into an adventure.
We walk to celebrate Flynn and the lives of others living with CF. There have already been so many breakthroughs in the short time Flynn has been here on earth, and we want to do our part to keep those breakthroughs coming. On April 26th, just a few days ago, Trikafta, a game-changing drug for so many with CF, received FDA approval for ages 2-5. We are grateful Flynn will soon start taking Trikafta, but there are still many people out there for whom this drug will not help. This is why we fundraise and why we will keep fighting.
What is CF?
Cystic Fibrosis (or CF) is a progressive, genetic disease that affects the lungs, pancreas, and other organs. There are close to 40,000 children and adults living with cystic fibrosis in the United State (and an estimated 105,000 people who have been diagnosed with CF across 94 countries).
In people with CF, mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene cause the CFTR protein to become dysfunctional. When the protein is not working correctly, it is unable to help move chloride - a component of salt - to the cell surface. Without the chloride to attract the water to the cell surface, the mucus in various organs becomes think and sticky, leading to a much higher risk of infection.
Will you join us?
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.