Welcome to Casey's Batters DC - same team, 2 opportunities to walk in 2022!
There has been incredible progress in the science to cure CF. Currently 90% of CF patients have access to a drug that significantly improves their condition. These patients still have CF, but by taking these oral meds their symptoms decrease dramatically and as a result they are living longer lives. This is fantastic news. However, due to the specifics of Casey's genetic makeup, Casey is in the 10% of patients who are not eligible to take these life changing drugs. Fortunately, the Cystic Fibrosis Foundation in now focusing on how to reach that 10%.
The big goal however, remains to find a cure for ALL cystic fibrosis patients. We are close, but we are not there yet. And we will not stop until CF stands for CURE FOUND!
Once again we are asking you to help fund this life saving research. CF is an orphan disease which means that almost all of the money needed for research comes from private donations. Our family has poured our energy into asking for financial help and raising awareness. We are walking in Great Strides twice this year - May 4 (Bethesda) and June 4 (Washington DC).
Thank you for your support in the past. We hope that you can help us again this year and until we are able to say CF STANDS FOR CURE FOUND. We will not stop "until it's done"!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.