We are so excited to be back IN PERSON for this year's Great Strides event. Our team will be walking in Bethesda on May 4th and we would love for you to join us.
This year's event is taking on extra meaning for the Brock family. Our daughter, Emerson, was recently diagnosed with the same CF mutation that Sawyer has. While we have suspected her of having the disease for some time, getting the genetic testing was the last piece of the puzzle and the information that we needed to hopefully improve her health going forward. We are fortunate that Trikafta is approved for Sawyer and Emerson's mutations and are optimistic about their future.
We know there are 10% of people with CF who are still waiting for a treatment. We will fight for them the way those before us fought for us and we will not stop our efforts until a cure is found for everyone with this disease. By joining our team, you are joining a group of people, like us, committed to finding a cure for cystic fibrosis. We know that together, we can conquer this disease.
Great Strides is a fun event that provides a fantastic opportunity for family and friends to come together to make a difference in the lives of people with CF. If you can, please join our team! There is no pressure to make a donation or raise money. We just want to have you on our team working towards a cure, raising awareness, and supporting our little fighters. Let's Brock N' Roll!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.