My Great Strides Story
Ten days after she was born, we learned our precious daughter Siobhan has cystic fibrosis. A life-threatening disease without a cure that impacts all affected persons differently, those earliest days were marked with confusion, dread and despair. However we were quickly offered a glimmer of hope when our care team shared news of the tremendous recent strides made in treating CF. While these advancements are exciting and fill us with hope, they are not a cure nor are they available to or effective for everyone living with CF.
It is our greatest hope for our daughter and all of those affected by this disease that CF will one day soon stand for cure found. By donating to our fundraising goal, you will help advance our mission for a cure for Siobhan and all the people living with this disease. We are so appreciative of your consideration and support!
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.