As many of you know, our son Chad was diagnosed with Cystic Fibrosis when he was a little over 3 years old with a life expectancy of 12 years of age. He will be 39 in July and is married with two incredible sons. Judy and I have been supporting the Cystic Fibrosis Foundation ever since --- for over 30 years – in multiple capacities at the local and national level. It is obviously personal and it has been a gift beyond measure.
Chad’s life story, is way too long to even summarize here. The key point is he is alive and healthy, in spite of having Advanced Lung Disease. If you want to take the time to hear it, we have attached remarks he gave at Johns Hopkins late last year. Through this journey, one thing is clear, we have watched a miracle over his life. The gene has been identified, knowledge about the disease has grown exponentially and he has personally benefitted from research, new therapies, new drugs and so many other medical advancements. The driver behind all of this is the Cystic Fibrosis Foundation, which is now often referred to as the best story in American medicine.
Judy and I have raised millions of dollars over the 30 years, thanks to the generosity of so many family members and friends. We wish there was a cure. There is not. We wish we were finished asking for money. We cannot pause or stop, even though this pandemic is certainly making it more difficult as we have canceled all major events. So, Judy and I will again make individual requests to all those who have been with us. But for the first time, we are also using Facebook to expand our reach.
We know that these are difficult and unprecedented times. Many of you have economic worries and certainly your own causes, which require support. All Judy and I can do is ask. No amount is too small. We respect any decision you make and will be humbled by any response, including joining our team. If you cannot donate at this time, we hope you will consider sharing this page with your network, or joining our Great Strides Inspire Spero team to fundraise on Chad’s behalf.
Thank you for any consideration you might give this request. Judy and I, our entire family, is in this Until It Is Done and CF stands for Cure Found. If you have any questions, please contact me through Facebook Messenger or email Judy or me.
Also, the Cystic Fibrosis Foundation is hosting a national virtual event “Together: Celebrating 65 Years” on 65 Roses Day (June 5th). You are invited to attend in support of Chad and the Inspire Spero team.
Hear Chad’s Story: https://www.youtube.com/watch?v=vTASsqRyHDc&feature=youtu.be
Join Inspire Spero Team: https://fightcf.cff.org/site/TR/?pg=team&fr_id=7872&team_id=90878
CFF’s Together: Celebrating 65 Years (virtual event): https://community.cff.org/vlc/live/38/page/218?fbclid=IwAR0X-Vg-CMAKdMRUnwLvOXoHDYpixe9zc2N257_V3h6JOSm6qMXphCvIxoI