Did you know that there are approximately 30,000 Americans living with cystic fibrosis? They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe.
Real progress has been made for those who have CF, including The U.S. Food and Drug Administration's approval of Trikafta (elexacaftor/ivacaftor/tezacaftor), the first triple combination therapy available to treat patients with the most common cystic fibrosis mutation in 2019 that will help 90% of the CF patients. According to cff.org, "Based on 2019 Registry data, the life expectancy of people with CF who are born between 2015 and 2019 is predicted to be 46 years. Data also show that of the babies who are born in 2019, half are predicted to live to be 48 years or older."
This year, Bodhi and I will be participating in a Great Strides fundraising walk on Bethesda row on May 3, 2023. We hope to help raise awareness and support for people with CF, their families, and help add tomorrows to the lives of people living with cystic fibrosis.
Please support me and Bodhi! Your gift is 100% tax deductible.
Thank you for your support and donations!
Jacquelyn & Bodhi