I'm reaching out to yall because we are participating in Great Strides: Cystic Fibrosis 5K in June and we need your help! This cause hits close to home for us because our sweet friends in Atlanta, Melissa and JB Pinkston, have a little boy Grayton who is currently battling CF.
CF is a life limiting genetic disease that affects the lungs, pancreas, and
other vital organs. Grayton's daily regimen involves taking pills (540 pills
a month) before each meal in order to give his body the ability to absorb
the fat and nutrients from food. Putting on weight is a constant challenge
for those living with cystic fibrosis, especially for G as his pancreas has no
functionality. Twice, every day he does his breathing treatment called CPT
(Chest PhysioTherapy). He wears a vest that's connected to a machine
that will shake him to help move the mucus in his lungs. He spends 30
minutes twice a day strapped to this machine (28 hours per month). As
you can imagine, it's a challenge to keep an 18-month- old entertained and
constrained during this time. His favorite vest time activities include
stacking shapes/blocks and reading a book about trucks. Dump trucks and
tractors are his favorite! His Dada is also trying to get him to play a
harmonica to help with lung capacity. He takes an acid blocker 2X's a day
and liquid multivitamin are also necessary to his daily routine and weight
There has been so much development in the last few years and we want to
continue this momentum by adding tomorrows to all of those living with
CF. The real progress has been made in the search for a cure, but the lives
of people with CF are still cut far too short. There still is no cure for this
devastating disease. By walking today, we are helping add tomorrows to
the lives of people living with cystic fibrosis. Will you join us? Support us by
making a donation to our Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly 5K that raises awareness and support
for people with CF and their families and I’m pleased to be leading the San
Francisco chapter. The walk is June 2nd with check-ins starting at 9am at
the National Mall, we’ll see you there!
WAYS TO HELP:
To walk with us: click on the "Join our team" button and select
"walker" From there you can make a donation and/or start your
fundraising. Joining our team does not require a donation or
fundraising, however, fundraising IS encouraged! The more resources we
have for research the better! This is the inaugural walk for DC so we are really looking for a lot of walkers!
To donate: click to make your donation or select a team member
from the list below. All donations are tax deductible.
To Help us fund raise: Click on the Join my Team button and select virtual walker. You folks are our online force who are driving donations in your
community and diligently bringing in money. Once you register you will
then be given a link that you can share with friends and family.
Help Share Grayton story: Telling Grayton story is HUGE in
educating others that a cure is needed and even better when a face is
put with the cause.
Your support and donations are giving their family what they need-more memories with our Grayton.
Welcome to Graytons Gaurdians YA'LL!