Wendy Burns

We are once again participating in Great Strides to raise money to find a cure for Cystic Fibrosis for our grandson Casey and all others who courageously battle this disease.

 Casey graduated from college and is living in Arlington and working hard at his first job at EY Consulting. We are so proud of all of his accomplishments especially in his diligence to stay healthy.  He spends hours each day to maintain his health through pills, nebulizers, and chest physical therapy. He recently completed a 2 week course of IV antibiotics via a PICC line in order to reduce his constant cough and improve his lung function.  

Casey endures these routines to stay as healthy as possible until more transformative therapies are developed to treat the rare CF mutations that he has that do not respond the the current "miracle drugs" that have changed the lives of so many CF patients. We are hopeful that a mRNA based therapy will be his first miracle drug and the early results from trials for this research for this are positive. The path to a cure is real.

The Cystic Fibrosis Foundation is dedicated to funding this cure for all who suffer from this disease. Their motto is "until it's done".  Research and clinical trials are currently underway not only to develop medications to treat CF symptoms but also for a true cure, an end to CF, for all patients.  Both of these goals are within reach, likely by way of genetic treatments. 

These promising genetic therapies - the cure - are far more costly to develop and bring to market than traditional medications. This is where we need your help.

Please consider making a donation to the Cystic Fibrosis Foundation to help Casey and all the others afflicted with this horrible disease. With your help we can make CF stand for CURE FOUND!

With hope and gratitude, 

Wendy and Harry Burns

Click on the link below to donate.  If you would prefer to send a check, send to us at 6470 Woodmont Ridge Road, Crozet, Va 22932.