Jennifer Miner

JP and Logan have Cystic Fibrosis which is an inherited life-threatening disease that affects their respiratory and digestive systems. The disease causes chronic lung infections along with poor weight gain and growth.

CF isn't pretty and it definitely isn't easy. But, with the introduction of Trikafta a couple of years ago, things have improved beyond our wildest dreams. The boys have "normal" lung function, no longer do vests (chest PT) or nebs, or use inhalers anymore. They do still take enzymes and will for the rest of their lives. The best news is neither have cultured any bacteria in a couple of years and the last time someone was hospitalized was in 2020! JP and Logan's lives are vastly better because of your ongoing support.

Every day I'm reminded of how incredibly fortunate the boys are to have Trikafta. But, as a mom, it breaks my heart to know that 10% of the roughly 30,000 people fighting CF in the US don't have this luxury including some very good friends of mine. They are still doing hours of chest PT and nebulizer treatments and worrying that the next cold or God-forbid COVID could land them in the hospital with an exacerbation. I want my friends and these other families to have what we have. This is why I'm continuing to work to raise funds so that someday soon CF will 100% stand for Cure Found!!

Please consider making a donation to help JP and Logan as well as every other person dealing with this disease live a long, healthy life. Your donation to our team is tax deductible and 90% of your donation will be used to help fund additional research.

Thank you so much for your support. We truly appreciate it!!

Love,

Jennifer and Steve

PS Please spread the word with your friends and family because every dollar raised gets us that much closer to our ultimate goal.