Natalie Woodburn

Our Grandson, Waylon, will turn 16 this summer!  Hard to believe so many years have passed.  He continues the wonder drug Trikafta and is amazing Dr. C. with his best ever PFT results and growth.  

But Trikafta is a treatment, not a cure.  We still need a cure.  We still need your help.

Did you know there are approximately 40,000 Americans (105,000 in total worldwide ) living with cystic fibrosis? Those numbers have climbed from 30,000 (in the U.S.) and 70,000 (worldwide) in just the  past few years due to people with cf living longer thanks to access to better treatment!  But not all of them qualify for new treatments coming down the pipeline.  We still need your support for the Cystic Fibrosis Foundation and Great Strides.  We need CF to equal 'cure found'.

I walk for them because I cannot give up hope that a cure will be found.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease.

By donating or participating in our May 11, 2024 Great Strides Walk at Leonardtown Wharf, you will help add tomorrows to the lives of people living with cystic fibrosis.

Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Though we still need to take extra precautions for infection control we encourage all Great Strides teams, friends and family members to come out (rain or shine).

Won't you please help with my fundraising?  Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.

Also, you are welcome to join our team 'Waylon's Warriors'! We would love to have new team members!

Thank you,

Waylon's Gigi