Hello Friends and Family!
We are once again walking in Great Strides to raise money to find a cure for Cystic Fibrosis for our son Casey and all others who courageously battle this disease. Casey is graduating from college this spring. We are so proud of all of his accomplishments, both in the classroom and in his diligence to stay healthy. He spends hours each day to maintain his health through pills, nebulizers, and chest physical therapy.
Those of you who follow CF news know that many CF patients are currently benefiting from life changing oral medications that minimize CF symptoms to the point that they no longer need to follow the exhausting routine of drugs and therapies to keep them healthy. They are expecting to live many decades longer than they ever expected.
Casey is not eligible to take these miracle drugs. His CF is caused by what are termed rare or nonsense CF mutations. The Cystic Fibrosis Foundation is dedicated to finding a cure for all CF patients and is now focusing in on rare and nonsense mutations. Their motto is "until it's done". Research and clinical trials are currently underway not only to develop medications to treat CF symptoms for these patients but also for a true cure, an end to CF, for all patients. Both of these goals are within reach.
This science costs money and that is where we need your help. Please consider making a donation to the Cystic Fibrosis Foundation to help Casey and all the others afflicted with this horrible disease. With your help we can make CF stand for CURE FOUND!
Click on the link on the left to donate, learn more, or sign up to join our team. If you would prefer to send a check, please make it out to Cystic Fibrosis Foundation and send to us at 5805 Searl Terrace, Bethesda, MD 20816.
If you want to walk with us in DC on June 3, click
With hope and gratitude,
Dennis and Jennifer